Authors

Victoria Hordern

Partner

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Jo Joyce

Senior Counsel

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Debbie Heywood

Senior Counsel – Knowledge

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Elisa-Marlen Eschborn, LL.M. (Turin)

Associate

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Authors

Victoria Hordern

Partner

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Jo Joyce

Senior Counsel

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Debbie Heywood

Senior Counsel – Knowledge

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Elisa-Marlen Eschborn, LL.M. (Turin)

Associate

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15 March 2022

Global Data Hub – 3 of 17 Insights

Global Data Hub: Health data – getting the right balance between innovation and data protection

Personal health data attracts special protection but also benefits from exemptions under UK and EU data protection law.  Have legislators and regulators got the balance between innovation and privacy right or do the rules overly restrict advances in healthcare provision and research?  We look at some of the particular issues involved in processing health data - not least in identifying what it is and how it can be used.  We focus on data transfers, cybersecurity and fair and lawful processing, as well as looking at guidance and proposals which aim to clarify existing law, and possibly revise or add to it in the near future.


Defining and using health data

Victoria Hordern looks at what constitutes health data and the lawful bases on which it can be processed under the (UK) GDPR.

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Why isn't transferring health data across borders for research purposes easier?

Victoria Hordern looks at the restrictions on exporting health data and at whether they are really proportional given that potential benefits could well outweigh any risk.

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Fairness and lawfulness in the context of health data

Ed Hadcock looks at the importance of fair and lawful processing of health data to establish trust as well as data protection compliance.

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More health data, more risk

Jo Joyce looks at cybersecurity challenges facing health data and at ways to manage risk.

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Diagnosed by big data

Victoria Hordern looks at the use of big data and AI in medical diagnostics in the context of data protection and AI regulation.

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UK data protection law – a barrier or the key to unlocking health data for scientific research?

Debbie Heywood looks at the scientific research provisions in the UK GDPR and Data Protection Act 2018, in the context of health data.

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EU cross-border health data spaces – where are we now?

Elisa-Marlen Eschborn looks at the opportunities created by the planned European Health Data Space, and at whether they can be realised by 2025.

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ICO publishes draft guidance on research provisions in the UK GDPR and DPA 18

The ICO seeks to clarify the rules when using personal data for research.

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In this series

Data & cyber

The EU's Whistleblowing Directive: privacy concerns with whistleblower hotlines

Helen Farr looks at the data protection implications of the EU Whistleblowing Directive and whistleblower hotlines more generally.

11 July 2022

by Helen Farr

Data & cyber

Pensions dashboards and data sharing

Anna Taylor and Jo Joyce look at the data sharing requirements for the proposed pensions dashboard and resulting data protection considerations.

17 May 2022

by Anna Taylor, Jo Joyce

Data & cyber

Global Data Hub – Data breaches

11 June 2021

by Debbie Heywood

Data & cyber

Global Data Hub – Data exports

16 April 2021

by Debbie Heywood

Data & cyber

Global Data Hub - Health data

27 November 2020

by Multiple authors

Data & cyber

Global Data Hub - Data transfers after Schrems II and Brexit transition

9 October 2020

by Multiple authors

Data & cyber

Global Data Hub - Children

6 September 2019

by Multiple authors

Data & cyber

Global Data Hub - life sciences

10 January 2020

by Multiple authors

Data & cyber

Global Data Hub - Data protection by design and default

6 March 2020

by Multiple authors

Data & cyber

Global Data Hub – HR data: an update

13 July 2020

by Multiple authors

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